The mission of Us TOO is to help men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy. Us TOO meetings provide men and their families with free information, materials and peer-to-peer support, so they can make informed choices on detection, treatment options, and coping with ongoing survivorship. The national organization was founded in 1990 by five men who had been treated for prostate cancer.
If you are able to do so before your first US Too meeting, download, complete, and bring a copy of the Prostate Cancer Record and PSA Historyform with you. You may download these as a single Excel document or as two, separate pdf documents.
Us TOO groups:
Us TOO Kuakini
Meets on the second Wednesday of each month at 7 pm in Room PB-2 at Kuakini Hospital.
Next meeting: February 13, 2019
We will have a DVD shown from the 2018 Prostate Cancer PCRI Conference, held in Los Angeles, CA, Sep. 7-9, 2018. The talk is by Eugene Kwon, MD, Professor of Urology and Immunology, Mayo Clinic, Rochester, MN and is titled “Prostate Cancer Heterogeneity”. He will discuss the cellular differences including the dangers of neuroendocrine and small cell prostate cancer (which does not generate PSA), the various imaging modalities, relationships to relapse, and the immunotherapies on the horizon.
As time permits, we will also have shared discussions among members. We hope to see you at the meeting!
Contact Paul Mizue at 222-0425 or firstname.lastname@example.org for information and directions.
Us TOO Pali Momi
Meets on the third Tuesday of each month at 7 pm in the Diamondhead Conference Room at Kapiolani Medical Center at Pali Momi.
Next meeting: February 19, 2019
If we have any new members, we will review his (or their) situation and invite him to ask any questions of the group. Also, if there are any issues or questions that any members would like to address, please bring them to the meeting for discussion. If there are no new members or issues to discuss, Dr. John Corboy (a current UsTOO member) has graciously agreed to share his knowledge of and his experience in getting a fairly new treatment called Ga68/PSMA/Lutentium-177. This is a systemic treatment which combines PET imaging (to identify the sites of cancer in the body) with a form of liquid radiation to kill the cancer at the same time. It’s a treatment which is only available in the U.S. via clinical trial for those who meet certain requirements. However, the treatment is available outside of clinical trials in both Germany and Australia. While it has been used primarily for advanced stage cancer patients who have exhausted other treatment options, it has been used for patients who seek a treatment option which does not require hormone therapy or chemotherapy (in Germany and Australia). Dr. Corboy’s presentation should be of interest to all advanced stage cancer patients and to those who may want to consider a treatment option outside of hormone therapy and/or chemotherapy.
If you know of any new members that would like to attend the meeting, please have them call me so that I can have them fill out a form before they come. Feel free to call me if there are any questions or issues.
Spouses and significant others are welcome. Parking validation will be provided. If you attend the meeting, you may want to bring a jacket as the conference room tends to get cold.
Meets on the second Thursday of each month at noon in the Church of the Holy Cross, 400 W. Lanikaula St., Hilo
Next meeting: February 14, 2019
Contact Albert Manliguis at 935-2723 or Roy Toma at email@example.com for information and directions
DISCLAIMER: The information and opinions expressed on this web site are not an endorsement or recommendation for any medical treatment, product, service or course of action by the Hawaii Prostate Cancer Coalition and are not intended to be a substitute for professional medical advice, diagnosis or treatment. You should not rely solely upon information found in this web site but instead seek the advice of your physician or other qualified health care provider who is familiar with your individual medical needs.
98-1214 Alolua Street, Aiea, HI 96701 firstname.lastname@example.org 808-222-0425